• Lilith@beehaw.org
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    9 months ago

    While it’s a win to see this pushed forward, it really sets a tone of how little attention is given towards women’s healthcare that it requires an Executive Order to make it a priority. It’s 2024 and yet I have seen online forums sharing advice on how not to be dismissed by doctors for years because of how prevalent of an issue it is. That it’s far easier for a doctor to label something as anxiety or normal because there isn’t enough information for it and they can’t be bothered to look beyond what isn’t understood. Women have been dying for years because of this lack of care and investigation; it’s why cervical cancer is a silent killer. If you’re a minority, this is even worse.

    I really hope this research encourages a new generation of doctors to be more familiar with women’s health issues and to be less dismissive of us when we reach out for medical help. I’m tired of the mental weight of hoping I’m listened to by a doctor and having to treat a doctors visit as a dissertation just to be taken seriously.

    Additionally, it’s really disturbing how many gynos are convinced the cervix can’t feel pain and the very biopsies intended to save our lives are done without anesthetic too often than not. Seriously, what the hell? Is this some outdated medical knowledge steeped in punishing the original sin of Eve? Maybe if these docs took a bite of that apple too, we wouldn’t be here.

    • boogetyboo@aussie.zone
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      9 months ago

      I recall, years ago, both having a head cold and also persistent pain in my knees. I’d booked a doctor’s appointment for the knees; I knew the cold just needed rest and with work being as busy as it was I figured I’d use the time I already had taken off for the bug to get in for my knees.

      My partner watched me drag my sad, snotty body out of my track pants and hoody into smart casual clothes, put on makeup, fix my hair. He was like, ‘why are you doing that - you’re sick, you’re going to a doctor, you can look sick.’

      I was like, ‘yeah, but I need to make sure I’m taken seriously and have the best chance of considered care. You don’t get that guarantee as a woman. Got to ‘look like’ a real patient.’

      I think I read a study years ago about it, but I can’t find it now. But my own anecdotal experience is that if I dress how I feel, I get worse treatment. The impression I get is they think my thoughts/concerns are hypochondria/Dr. Google nonsense.

      If I dress how I would for work - casual professional, I’m seen as an insightful patient with some valid speculation about my problem. Male doctors are the worst but I’ve experienced it with women too.

      It’s fucked. It’s an obvious privilege too. If you don’t work a white collar job and don’t have those outfits in your wardrobe, or an interest in wearing makeup or whatever - does that mean you’re just always going to get slightly worst treatment than me?

      I’m not even getting into the POC aspect, can’t even imagine that on top.

      • Lilith@beehaw.org
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        9 months ago

        Fucking hell, I’ve literally had to do the same thing when I was experiencing chest pain and heart palpitations! My husband thought I was nuts for putting on makeup and donning “business wear” before he took me to our local urgent care, but I did so I wouldn’t be dismissed due to having anxiety on my records. I knew myself what I was feeling wasn’t anxiety, but if I looked in anyway or shape or form as an “anxious woman” I wouldn’t be taken seriously. I even had to specify we needed to go to the one location that was further away due to their closer location dismissing me for a different issue that was properly looked into at this preferred location.

        I was lucky to be listened to in that situation, got an EKG, and a referral out to a cardiologist; but that only happened because I had a younger doctor who wanted to rule out all possibilities. A few months previously I was dealing with numbness in one of my legs and the other urgent care I wanted to avoid literally sent me out the door after looking at me for 10 minutes and doing a leg stretch. The issue persisted and it wasn’t until I went to this same second location that someone actually ran some blood work on me and referred me for an ultrasound on my leg. It just shouldn’t be that hard to be properly treated when both of these experiences revealed issues that needed to be treated.

        • downloadingcheese@beehaw.org
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          9 months ago

          They let me walk around for 5 months with a broken vertebra pinching my nerves because they figured it was just tendonitis. They were completely baffled that PT was making things worse. I was finally able to get a referral because my dad came with me to an appointment (I was 28). The new doc ordered an MRI first thing and found the vertebra.

          • Maeve@kbin.social
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            9 months ago

            Thankful you could afford MRI! I know someone who was ordered four, and could not afford them, also could not afford a gastroenterologist appointment. Of course, this is charted as noncompliance, so…

            • downloadingcheese@beehaw.org
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              9 months ago

              It was a work injury so thankfully I didn’t get the bill.

              Of course that would be seen as noncompliance, they were choosing to be poor/have crappy insurance. We women need to just stop being so hysterical and pull ourselves up by our boot straps. (So much /s).

              • Maeve@kbin.social
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                9 months ago

                Oh wow! I’m so glad it wasn’t at your expense. Did work retaliate for you having to be treated at their insurance expense? It’s not uncommon where I live for people to be dissuaded by fear of unemployment. I wish I were being hyperbolic.

                It’s infuriating. We’re treated as if we are naughty children, seeking excuses to play hooky from first grade,.

                • downloadingcheese@beehaw.org
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                  9 months ago

                  Yes, they did fire me after they found out it was a broken vertebra. I ended up getting an attorney and while I didn’t get my job back they did have to pay me some lost wages. It was probably for the best though, as I couldn’t have continued to do the job anyway.

                  Lol, naughty kids trying to play hooky is a perfect way to describe it.

        • boogetyboo@aussie.zone
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          9 months ago

          Yep. When I was going through extreme tendonitis and also sciatic nerve pain, I made sure I ‘looked wealthy’ so I wouldn’t be accused of drug seeking when asking for pain meds. So dumb.

    • LostWon
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      9 months ago

      Actually the history of why they think that is probably steeped in the horrors of how what little info they do have was obtained. Involuntary operations without anaesthetic on any women of colour and white mental health facility patients, graverobbing, you name it and it was probably done. Also, the decades of not including women as subjects in medical research even when it specifically applied to the female reproductive system didn’t help.

  • FfaerieOxide@kbin.social
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    9 months ago

    The announcement contains four major components: prioritizing women’s health research and research innovation; strengthening research and data standards related to women’s health; galvanizing new research on women’s midlife health, with a focus on conditions that occur after menopause, like heart attacks, Alzheimer’s disease and osteoporosis

    The executive order also specifically calls for new research proposals on emerging women’s health issues;

    • FfaerieOxide@kbin.social
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      9 months ago

      I just realized when you view the above post on Beehaw you can’t see the attached sardonic image and so it just looks like I’m quoting portions of the order (presumably approvingly).

      I was not.