Hello everyone! This is the first post in the newly made Disability and accesibility community. Feel free to post anything health, chronic illness, disability or accesibility related. If you need a space for support or sharing your experiences regarding all of the above topics, this is the right place as well :)
Hello. I’ve been having trouble with my sight (basically it gets blurry suddenly and I can’t see thing that are at a close or middle distance. At the beginning the “blur” only affected the view of things near me, but it’s been getting worse) and to feel my arms and legs, which of course affects my mobility. Apart from being in pain almost constantly
Finally, a year ago I was diagnosed with several issues in my vertebral column, including cyst in my cervical vertebrae, that doctors have told me will never go away.
The issue with my sight seems to be at a muscle level, but my doctor cannot be sure until she can compare two visual field test. I’ve just had my second one last week (the other was last year when I started to make appointments with her after struggling for years with specialists that told me nothing was wrong and that they were no changes in my visual), so luckily it won’t be much time until I get a diagnosis.
To make things worse, I’ve started to have heart issues and my last ECG (a simple one and holter) came with bad results. But I don’t have an appointment with a cardiologist til July.
I also have hyperacusis and bad fine motor skills that I don’t know if I was born with or were a product of the epilepsy I had from age 3 to age 14.