• GreyEyedGhost
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    6 months ago

    Yeah, I suffer from chronic pain, too, though not to the degree that you appear to. It’s kind of funny because I know I’m really tired or mentally exhausted when I start noticing all the pain I normally have, but just haven’t even noticed for hours before.

    It’s impressive what the mind can tolerate.

    • Mycatiskai
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      6 months ago

      Your brain can take a hell of a lot of abuse until it can’t.

      I was holding it together for nearly 3 decades before it was unable to keep up with major sleep deprivation anymore. 10-12 hours of sleep a night and a nap midday couldn’t keep me going.

      I was blacking out time while driving, had barely any memory, had involuntary muscle spasms and couldn’t physically recover from injury in a reasonable time.

      Once I started on CPAP I recovered by leaps and bounds, I sleep way less but am fully present in the world, like being on high dose of caffeine without taking anything.

      • Buglefingers@lemmy.world
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        3 months ago

        I’m struggling myself there, my mental acuity has dropped, so has my social ability, understanding, and learning. I have UARS and need to get it fixed. I sleep in excess and its never quality. Several sleep studies showed I wake from REM 15-20 times an hour (not to consciousness though).

        • Mycatiskai
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          3 months ago

          To anyone not aware of sleep apnea it wouldn’t seem like there was anything wrong with my sleep. I don’t snore, I just don’t breathe continuously when unconscious.

          It took about 2 years to fully recover mentally from decades of this shitty sleep. I only found out from visiting my parents and my mom saw me not breathing while I was asleep on the couch. I’ve also had 6 sleep studies in 11 years to try and figure out why it is happening but it is idiopathic.

          I can’t remember what people on Reddit with UARS found to be the best treatment but the biggest step always seemed to be getting a doctor to diagnose it properly instead of just signing it off at regular sleep apnea. I hope you find a treatment that helps. The brain can bounce back, so don’t give up hope that you can get your mind back.

          • Buglefingers@lemmy.world
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            3 months ago

            Thanks, I am trying to stay hopeful. My next step needs to be an ENT and probably to fix a collapsed nasal cavity. I worked with a neurologist for 3 years (where the sleep studies came from) but they ended up leaving state for persona matters. I live in the USA so I have to go through insurance which doesn’t really recognize UARS. Though I did scratch my way into diagnosis of apnea (sleep study recorded just above the 5% oxygen drop required by insurance) they refused to let me test with a CPAP. It was the only diagnosis my neurologist could use to get insurance to help, still, they won’t really do much for me.

            Hopefully soon I can sit in one place without the threat of falling asleep. Or wake up feeling rested and not my eyes burning feeling like I was hit by a brick lmao. Sleep issues are no joke and you’re right to tell people to make sure people get it properly handled ASAP