Seigest

  • 52 Posts
  • 618 Comments
Joined 2 years ago
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Cake day: June 12th, 2023

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  • Funny enough, when I first got diagnosed, I was also seeing a dietitian. They suspected my sleep issues might be caused by a food allergy that was making my intestines swell. According to a blood test, the culprit was beef. So I cut it out completely.

    Years later, I found out the test results were wrong and I’m not actually allergic to beef. But since removing it from my diet had improved my sleep so much, I just decided to keep avoiding it. Then, after a cholesterol issue, I took it a step further and went fully vegan about a year ago. Since then, falling asleep has become even easier.

    That said, while I don’t struggle as much with falling asleep anymore, my sleep quality is still apparently pretty poor.


  • Thank you for sharing.

    Physical activity like sports would definitely help I think. Me and my friends are all the same in our struggles to do the bare minimum of exercise. We’re all in the loop of being too tired to do anything because we are too tired to do anything. I’m hoping the CPAP can help break that cycle. Though I have started seeing someone who is into long walks. So I am improving there, slowly.

    I had to give up coffee awhile back since the addiction was a little too much for me. I still enjoy a cup on special occasions when I won’t need to sleep well that night. I’ve noticed it’s effects are stronger the older I get.



  • I wish you the best with getting your diagnosis. I absolutely dreaded the sleep studies. They were always scheduled on work nights, and I’d get almost no sleep. Then they’d kick me out at 6 a.m., and I’d end up stumbling back to my office since it was closer than going home.

    Thankfully, my next one is on a weekend, so at least I can go straight home afterward.

    When I get those strong, sudden urges to sleep and can’t actually fall asleep, I feel awful. Even worse, I can get irritable with the people around me. So, at least in my experience, the sleep issues came first. And the more I’ve done to address them, the better I’ve felt overall.





  • My friends have their reasons, but most of them are either unemployed or working part-time. I was in a similar situation when I was younger.

    Now that I’m working full-time in a 9-to-5 kind of job, I’ve realized I just can’t do what I used to. I try to resist taking naps, but sometimes the urge to sleep comes on so suddenly and strongly that fighting it actually gives me migraines and causes mental distress. I think that’s the narcolepsy at play.




  • Not sure if this will help but here’s my take.

    I’m 38 and ace, and I was in a very similar place. Over time, my close friends found their partners, and I ended up feeling even more alone.

    I believed I had to earn a healthy relationship. I thought I needed to get physically fit, pay off my debt, and become “worthy” enough. Thankfully, I found a good therapist who helped me step away from that mindset. Personal goals are valuable, but the truth was that I would probably never feel good enough if I kept tying my worth to achievements.

    At the same time, I was in an aro-ace relationship with someone who was financially abusing me. That situation was a major factor holding me back.

    In the end, the root of many of my struggles was self-hate. It took about a year of therapy to start correcting that. I’m still working on self-compassion, as well as my financial and physical well-being. But I’m now dating someone in a similar situation, and I’m genuinely happy.

    So if you’re open to advice, here’s mine: focus on building self-compassion. You deserve happiness. You deserve to be loved.