I did have a long log of symptoms compiled at the time I went to the specialist. He didn’t care. I have medical charts from many doctor visits showing my pain and fatigue and all that, but the more “minor” things and more recent changes I know I need to pull together better into a nice list and make sure my doctor can help me if i want him to be able to present it to a specialist. He told me to get the printed results and be aware that my labs already say “Lupus” but I still need to prove I have enough symptoms to treat it.
I think you need yo file a complaint against scumbag doctor. The more you write, the more I think he needs some evidence stacked against him for the day that someone can bring a malpractice suit against him. Filing a complaint against him doesn’t do anything for you, but it could help someone in the future.
I’m sorry you ran across the most douche-y of doctors
I should think about it. I’ve heard he’s like that with a lot of patients but they didn’t expect him to do it to me because I had so many notes from other doctors backing up what I said. He told me I never had Lyme disease, I just had a stroke and laid around for a year for apparently no reason. I asked why I was in pain for three months before the stroke, so much that I couldn’t get out of bed. He said he didn’t know, but it wasn’t Lyme disease. I told him my blood test for Lyme was positive and he said it was not, it was sort of borderline and he didn’t know why my PCP said it was, even though the test was done at the Mayo Clinic and they literally tell you what the numbers mean and it was QUITE positive. Unfortunately I didn’t know there was a tick and I didn’t get tested until 2 months after it started so it was too late but we still tried antibiotics anyway. If you don’t do it early it’s not enough to kill it, just weakens it. You still suffer for a solid year straight.
He lectured me about opioids not being appropriate for chronic pain, even though I never once mentioned painkillers. The only thing I said was that if there is a medical issue causing my symptoms I’d like to treat that, because I’d rather live without the daily pain and fatigue if possible and lower the other drugs I’m on to treat that. I don’t like the side effects. I’ve been sick for 6 years now and the only controlled drugs I have are Lyrica for nerve pain, and a strong muscle relaxer for my migraines. Still no opioids even though all my doctors have said they will give them to me if I want them, except for that one guy.
Report him please. He’s gonna cripple or kill someone.
Also what I use for fatigue is a supplement called coq10. It’s not magic, but it does give me a few more hours of energy before I can’t move and makes me feel almost normal waking up. I don’t know if it will work with your condition, since it mostly helps where your fatigue is caused by your body spending a lot of time healing itself, but maybe worth a shot?
I did have a long log of symptoms compiled at the time I went to the specialist. He didn’t care. I have medical charts from many doctor visits showing my pain and fatigue and all that, but the more “minor” things and more recent changes I know I need to pull together better into a nice list and make sure my doctor can help me if i want him to be able to present it to a specialist. He told me to get the printed results and be aware that my labs already say “Lupus” but I still need to prove I have enough symptoms to treat it.
I think you need yo file a complaint against scumbag doctor. The more you write, the more I think he needs some evidence stacked against him for the day that someone can bring a malpractice suit against him. Filing a complaint against him doesn’t do anything for you, but it could help someone in the future.
I’m sorry you ran across the most douche-y of doctors
I should think about it. I’ve heard he’s like that with a lot of patients but they didn’t expect him to do it to me because I had so many notes from other doctors backing up what I said. He told me I never had Lyme disease, I just had a stroke and laid around for a year for apparently no reason. I asked why I was in pain for three months before the stroke, so much that I couldn’t get out of bed. He said he didn’t know, but it wasn’t Lyme disease. I told him my blood test for Lyme was positive and he said it was not, it was sort of borderline and he didn’t know why my PCP said it was, even though the test was done at the Mayo Clinic and they literally tell you what the numbers mean and it was QUITE positive. Unfortunately I didn’t know there was a tick and I didn’t get tested until 2 months after it started so it was too late but we still tried antibiotics anyway. If you don’t do it early it’s not enough to kill it, just weakens it. You still suffer for a solid year straight.
He lectured me about opioids not being appropriate for chronic pain, even though I never once mentioned painkillers. The only thing I said was that if there is a medical issue causing my symptoms I’d like to treat that, because I’d rather live without the daily pain and fatigue if possible and lower the other drugs I’m on to treat that. I don’t like the side effects. I’ve been sick for 6 years now and the only controlled drugs I have are Lyrica for nerve pain, and a strong muscle relaxer for my migraines. Still no opioids even though all my doctors have said they will give them to me if I want them, except for that one guy.
Report him please. He’s gonna cripple or kill someone.
Also what I use for fatigue is a supplement called coq10. It’s not magic, but it does give me a few more hours of energy before I can’t move and makes me feel almost normal waking up. I don’t know if it will work with your condition, since it mostly helps where your fatigue is caused by your body spending a lot of time healing itself, but maybe worth a shot?