Menieres is a disorder of the inner ear with the most pronounced symptoms being vertigo and hearing loss. I’d be happy with any mildly related communities also such as for non-visible disabilities, permanent progressive illnesses, hard of hearing, deaf, etc. I haven’t found anything through searches yet and I’m not experienced enough to create or moderate my own community. Thanks!
If you find anything, lemme know. Ménière’s disease sucks, and my left ear is pressurized currently.
It most certainly does suck. It’s be great to have a place where we can vent, talk about what triggers attacks and what helps prevent/soothe attacks. There was a sizeable community on Reddit, and I miss that resource.
If you don’t mind me asking, how long have you had symptoms/been diagnosed? It’s been an eight year struggle for me, but only recently diagnosed after moving states and seeing a new ENT.
it’s been roughly 7 years on the diagnosis, maybe 8 or 9 for the symptoms. I had a pretty good ENT.
I didn’t know there was a subreddit for it, that may have helped me lolI’ve been mostly managing with magnesium and hydration, but for some reason this last couple of weeks, it’s really kicked in hard
Hydration is super underrated!
Sorry to hear you’re having it tough lately. I have been too, and that’s why I was trying to find the right group here to chat it out lol. I’m honestly surprised there’s no community that’s remotely relatable for what we’re going through.