• whoisearth
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    10 months ago

    This is so not the case as on reddit and I’m disappointed to hear someone say that. As the father of an L2 child the majority of autistic and “autistic” people online are the exception not the rule. This is why subreddits like spicyautism came around because of the deluge of asshats who don’t represent the silent masses of autism minimizing the struggles of life.

    I’m sorry if that comes across confrontational but it’s the reason why for many, myself included, the main autistic subs became a toxic cesspool of self diagnosed people invalidating real autistic people because they know better.

    • Haui@discuss.tchncs.de
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      10 months ago

      It really comes off confrontational. As an autistic adult with an autistic wife I can vouch for the exact opposite. It took me years to get a diagnosis, same for my wife.

      We don’t have any resources for autistic adults, doctors don’t know shit about autism in adults and if someone has an abuse trauma, they get institutionalized for that instead of looking at the bigger picture.

      I don’t wan to fight you. Your feelings and experiences are valid. Let’s just not try and gatekeep and we‘re on the same page, deal?

      • ideaPDish@universeodon.com
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        10 months ago

        @Haui @whoisearth
        I don’t understand your “It really comes off confrontational.” What is it in your words.

        I had one visit with a pcp, and then read his session notes because I could. It was obvious that he really didn’t get what I said and instead reported that I was flakey, rather than consider that there was more depth than he could recognize. I wrote to correct him. I may have to teach him that diferent is not bad or dumb or a disability, it can also be a superpower. Just because I stim behind my back, doesnt mean that I can’t understand particle physics and ask hard questions, or sometime overload and need to leave the room. Medicine is dumb.

        You are right, yo don’t want to fight me. As a camo I’m not exactly sure that my feelings are valid, even though my memories are sharp, and I know what I did would piss some people off. I mean, the past is the past and i’m not denying it happened. The reframe is comfort. Every day, millions of 'Oh yeah’s.

        I’m working on figure it out.

        • Haui@discuss.tchncs.de
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          10 months ago

          I‘m having a hard time finding the source of the miscommunication here but I get you. It is insanely frustrating to talk with the uninitiated about autism in adults.

          My therapist stepped on my feelings so many times I can’t count them. „Do you really think you‘re autistic?“ well, the diagnosis says so and I also stimm a lot, have selective mutism, lack facial expressions, don’t understand body language, cant read or remember faces, am mindblind and countless other things I can’t think of rn.

          I‘m not stupid either but it turns out I‘m very easy to take advantage of if I trust someone. Bad combination.

    • glassware@lemmy.world
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      10 months ago

      Spicyautism came about as a troll subreddit for non-autistic parents of autistic children to talk about how much they hate low support needs autistic adults. They only posts there that get more than 20 upvotes are “Here’s why I don’t think L1s really have autism”

      • whoisearth
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        10 months ago

        Proof of just hurting your feels?

        • glassware@lemmy.world
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          10 months ago

          Proving my point? You’re a non-disabled person trolling a disability forum with ableism, but you think you have some righteous justification because you know somebody with a more severe disability. And you’ll never self reflect on it. Spicyautism in a nutshell.